Live Kidney Donation Aotearoa’s main roles are to inform, promote and facilitate in the area of live kidney donation in New Zealand so that donors, recipients and health practitioners can make the best choices.
The programme team will:
- develop culturally appropriate educational resources in multimedia formats which build health literacy (knowledge and skills) for Māori and Pasifika patients by providing information about eligibility for live kidney donation, the clinical evaluation required for live kidney donation, the donor selection and work up process, the surgical procedures for donation, concerns about safety of procedures, concerns about recovery and financial assistance available,
- develop a home-based Live Kidney Donor Education Programme using health educators from priority populations trained to build patient and whānau health literacy. This education programme will be provided for every Māori and Pasifika patient who meets clinical criteria in relation to a transplant,
- identify and train lay volunteers within patients and whānau social networks who can build health literacy by providing information on end-stage kidney disease and live kidney donation including the process and outcomes of offering to donate a kidney,
- develop and implement a “Home and Kidney First” policy to change clinical practice especially regarding educational sessions and decision support for pre-dialysis patients. Renal medicine staff will be trained how to build health literacy to support the implementation of this policy,
- build the understanding and knowledge of Primary Care Providers in relation to live kidney donation so they can share appropriate information and build patient, whānau and community health literacy about live kidney donor transplantation at the earliest and most appropriate time,
- develop community and community-leader engagement frameworks for Māori and Pasifika communities and leaders, and
- implement these community frameworks to build community awareness and health literacy around live kidney donation by having regular community meetings at appropriate venues (churches, marae, non-healthcare support groups).